Being a Mom definitely isn’t for the faint of heart.

Mom’s play so many different roles like parent, teacher, cheerleader, disciplinarian, friend etc.  But…what role do you play when your kid is sick?  You play the role you were meant to play Mommy!!  It’s taken me a week to write this, how do I possibly put into words what I feel? especially watching my baby go through something that she should never have to.  I know that a lot of other families are going through much worse and I offer up lots of prayers for them!  Everyone is going through their own battles and struggles.

Just recently after many blood tests and an MRI we found out that miss Lexi has tendonitis (inflammation on her tendons)….it goes hand in hand with her JRA.

A Diagnosis

Lexi was diagnosed with Juvenile Rheumatoid Arthritis at a year old,  just months after she started walking.  I remember watching my beautiful baby girl wake up in the morning without her usual smile on her face.  Something was definitely off,  mommy intuition!!  My baby girl did not want to do something as simple as walking (an accomplishment that months earlier made her so happy to do).  After getting my baby seen we had months of blood tests, x-ray’s, and a doctor that told me I was crazy and my kid was “just fine”.  We eventually found a doctor who would actually look at my baby, who didn’t rely on a blood test to tell her something was wrong. This amazing pediatrician simply asked my daughter to walk for her.  She saw what we had been noticing for months.

Mommy Intuition pays off 

Say what?!?!  My daughter has What? What is JRA? As a new mom I’m thinking…Only older people get arthritis.  How does a baby get this? Could I have prevented this?  These are the crazy questions that I had going through my ever crowded mind.    At the recommendation of Lexi’s Rheumatologist she had undergone a couple surgeries.  Insert mama worry and stress once again.  I have to say,  Lexi was the strongest one of us all.  This amazing little girl  went through all the needle pokes and tests with that cute little smile on her face. She ended up being in remission for 6 years!!!

As awesome as it was, we were so grateful that our baby had six pain free years. Unfortunately, things did change. Back to the Dr. we went.  Now that things have come full circle and we have a new diagnosis of tendonitis we are going to hit this head on together.  As a mom, I’ve realized that I need to approach this just as my lil luv has.  With positivity and lots of smiles. I am so proud and blessed to be this girls mama!!

I am constantly reminded that God will never gives us more than we can handle. We are our kids biggest advocate!!  When that mommy intuition kicks in listen to it, you know your baby better than any test or any doctor.  Whatever comes our way mamas… We can handle it!!!

JIA

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